tag:blogger.com,1999:blog-6091894993679105378.post4998930805636974907..comments2023-10-24T08:34:11.744-07:00Comments on Miss Kat's Deaf journey: JTC Week 2, Day 3Miss Kat's Parentshttp://www.blogger.com/profile/08535904035034717518noreply@blogger.comBlogger4125tag:blogger.com,1999:blog-6091894993679105378.post-76190998455466522472009-07-15T20:22:26.727-07:002009-07-15T20:22:26.727-07:00I can speak to Miss Kat's hearing you thing a ...I can speak to Miss Kat's hearing you thing a bit, maybe! <br /><br />I am Deaf myself, but I can speak and communicate orally. I used to have more hearing, like Miss Kat but mine progressed to a more profound loss later in life. <br /><br />When I don't have my hearing aids on and I am lipreading someone I often "hear" them. Even if I have NEVER heard their voice before, my brain just gives them one and I hear them very clearly. <br /><br />Is it possible when you are signing that you are mouthing too? Many hearing people do that, word by word mouthing. It is possible Miss Kat is lip reading that and her brain is putting a voice to it. Just an idea!<br /><br />And yes, when you live this hearing loss thing for a while you get used to never having full access to anything. It is just part of life. You as a mother will be frustrated with it forever, and Miss Kat will be sometimes too, but there are other times when she will just accept it and move on.JennyBhttps://www.blogger.com/profile/10554164236352077119noreply@blogger.comtag:blogger.com,1999:blog-6091894993679105378.post-15979811407084738802009-07-07T17:45:30.305-07:002009-07-07T17:45:30.305-07:00I wanted to add that all the people on the panel k...I wanted to add that all the people on the panel knew ASL, to varing degrees. But none of them used it as their mode of communcation.Miss Kat's Parentshttps://www.blogger.com/profile/08535904035034717518noreply@blogger.comtag:blogger.com,1999:blog-6091894993679105378.post-82226059669641714502009-07-07T15:01:37.651-07:002009-07-07T15:01:37.651-07:00Syndromic deafness is often not diagnosed until sy...Syndromic deafness is often not diagnosed until symptoms come up, mostly in early adulthood. I agree, all born-deaf kids should be evaluated for syndromes having effects that might be preventable or treatable. The good news is that they are rare and usually do not cause additional problems.<br /><br />Might Miss Kat be hearing you whisper as you talk with voice off? That would be an awesome feat for a CI, wouldn't it?<br /><br />The deaf panel sounds like oral deaf adults, since you didn't mention an ASL interpreter. I agree, something is missing.<br /><br />This is because oral deaf people are raised to "fit in" a hearing world and are encouraged not to make waves when the hearing world often fails to accommodate them. I was raised that way, too. "This is a hearing world. You must learn to live with that. You can't always expect them to bend over for you."<br />Today I hope that all deaf kids are taught the difference between fitting in and speaking up when appropriate.Dianrezhttps://www.blogger.com/profile/07077219189139398901noreply@blogger.comtag:blogger.com,1999:blog-6091894993679105378.post-20524310066258376382009-07-07T11:57:43.336-07:002009-07-07T11:57:43.336-07:00I'm surprised they never did any work-up! They...I'm surprised they never did any work-up! They obviously assumed the hearing loss was due to antibiotics/oxygen deprivation, but a work-up would have been nice to prove it! On the other hand, they did the full work-up for us, found nothing, and we were sent away with a pat on the head and the doc said "non-syndromic." Now we have some "other issues" like gastroparesis and the posterior urethral valves, so I'm wondering if he really does have a syndrome after all. We might never know, though!<br /><br />The individual evaluation sounds great, especially for setting goals for Kat's IEP. The adults on the panel probably won't have the same experience as today's kids, though it is still a fight for equal access!leahhttps://www.blogger.com/profile/05004783118268323560noreply@blogger.com